Update

Today we declared World War III on the tumor (now known as the “t”). We arrived at MGH at 9 AM. We had dutifully taken the anti-nausea drug at 7:00 AM following by the first dose of Temodar (chemo) at 7:30 AM like we had been instructed to do.

I did have Linda Mario paged. She came out. She asked if we had gotten the temodar (forgot to mention that MGH did get it in on Monday – couriered to them, no less - and I went into MGH and picked it up in the afternoon). She asked when Jack took it, I told her. She said oh, this is time sensitive and he should have taken it at 8:45 AM. Optimal effects are within the hour of radiation we are now told. I honestly believe her. She assured us that we would have no more problems now that we are under her care. I feel confident she is right. I was able to go with Jack and watch the buckling down. He is asking about the machine and how it works. The technicians tell him it is a proton machine but don’t know much else. I let them know that he is an engineer and has a very inquisitive mind.

The great news is that Jack felt no nausea from the drugs or treatments. We were told that only 11% of patients experience nausea. Generally, there can be some fatigue as treatment progresses. We were most thankful for the little gifts. Jack continues to walk and do strength exercises. His left side is somewhat less functional but that is likely from reducing the steroids which we have now increased. His spirits are strong, his smile is dynamic, and his trust in His Lord is unwavering. I am so thankful that our hope is not of things of this world but in wonderful counselor, prince of peace, the Lord God Almighty.

We are so grateful for the multitude of emails, cards, letters, books, food, hugs, and truly comfort and care during this journey. We feel totally embraced by the love that all of you have shown. If any of us wishes for change in the world, let it begin with each of us as we pour out the balm of love for each other and those around us.

I will update again over the weekend. Jonathan is coming home this weekend. We are hoping to look at some places for them to live. We desire your prayers that the Lord will open this door as He has all of the rest of the doors we are going through these days.

Blessings!
Carolyn